Coordinator - European Rare Blood Disorders

hace 1 semana

Barcelona, Barcelona, España Vall d'Hebron Institut de Recerca A tiempo completo
VHIR-RRHH-FOR-003_vs01_

TheVall d'Hebron Research Institute

(VHIR) is a public sector institution that

promotes and develops the research,

innovation and biosanitary teaching of the

Vall d'Hebron University Hospital. Through

the excellence of our research, we identify

problems of society and we contribute to

spread them around the world.

In April 2015, the
Vall d'Hebron

Research Institute (VHIR) obtained

the recognition of the European

Commission
HR Excellence.
This recognition proves that VHIR

endorses the general principles of the

European Charter for Researchers and

a Code of Conduct for the Recruitment

of Researchers
(Charter & Code).

VHIR embraces Equality and

Diversity. As reflected in our values

we work toward ensuring inclusion

and equal opportunity in

recruitment, hiring, training, and

management for all staff within the

organization, regardless of gender,

civil status, family status, sexual

orientation, religion, age, disability

or race.

Coordinator - European Rare blood disorders

Registries
The University Hospital Vall d'Hebron is highly specialized in rare diseases on a Regional, national and international level

with its recent incorporation as full member of 20 of the 24 European Reference Networks (ERN).

consists of 96 healthcare-providers from 14 Member States, with important interactions with patient groups covering those

conditions.

The ERN-EuroBloodNet coordination hub based in Barcelona, led by Dr Mañú Pereira, head of the Rare Anemia

Disorders research lab, directly leads the strategy on the development of European patient's registries, with the aim to

collect sufficient data on patients affected by these rare diseases to promote the epidemiological surveillance.

In this context, we are looking for a motivated, self-driven and committed Scientific Coordinator who will lead the

development of the different patients' registries coordinated in the Rare Anemias Disorders Research Line:
the recommendations of the European Platform on Rare Disease Registration (EU RD Platform).

collaborating with 13 member states across Europe to collect data.

JOB DESCRIPTION

Education and qualifications:

Required:
-
University degree in area of science / health (Biology, Biosciences, Medicine, Epidemiology)

  • Master / PhD (or 5 years of proven expertise in the area)
  • Fluent (spoken and written) English
  • VHIR-RRHHFOR003_vs01_
TheVall d'Hebron Research Institute

(VHIR) is a public sector institution that

promotes and develops the research,

innovation and biosanitary teaching of the

Vall d'Hebron University Hospital. Through

the excellence of our research, we identify

problems of society and we contribute to

spread them around the world.

In April 2015, the
Vall d'Hebron

Research Institute (VHIR) obtained

the recognition of the European

Commission
HR Excellence.
This recognition proves that VHIR

endorses the general principles of the

European Charter for Researchers and

a Code of Conduct for the Recruitment

of Researchers
(Charter & Code).

VHIR embraces Equality and

Diversity. As reflected in our values

we work toward ensuring inclusion

and equal opportunity in

recruitment, hiring, training, and

management for all staff within the

organization, regardless of gender,

civil status, family status, sexual

orientation, religion, age, disability

or race.

Experience and knowledge:

Required:
-
Experience with the management and exploitation of patients registries, the FAIR standards, international

codification, challenges of interoperability and alignment of eCRFs...

  • Experience leading consortia with international stakeholders and ability to find solutions in case of conflicting
interests between partners

  • An analytical mindset with problemsolving skills
  • An easygoing person with human qualities
  • Ability to work effectively with a dynamic team and to work independently with tight deadlines

Desired:

  • Experience in the field of hematology
  • Understanding of GDPR, legal agreements (MTA, Data sharing agreements) and experience with ethics
documents (preparation of submission file for ethics)***
Main responsibilities and duties: -
Leading the implementation of the European Patients Registries coordinated by VHIR, or in which VHIR is

involved :
strategic planning, conducting Steering committee and scientific meetings, proposing priorities,

raising risks and developing risk mitigation strategies.

  • Looking for new funding sources, being in touch with Pharma industry and national / European stakeholders
  • Preparing and delivering presentations at different meetings (occasional travel in the European Union will be
required).

  • Overseeing the strategical approach of the implementation of the registries in the group, and their links with
  • Contributing to the development of research

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