TK2d Patient Journey Lead

Make your mark for patients
TK2d Patient Journey Lead (Iberia)
We are looking for a proactive, scientifically proficient, and empathetic
TK2d Patient Journey Lead
to join our
Rare & Epilepsy Organization
team, based in
Madrid, Spain
.

About The Role
You will play a pivotal role in ensuring that our innovative treatment reaches the patients who need it most, positively impacting the lives of those suffering from TK2d. Reporting directly to the EU TK2d Head and collaborating with a cross-functional team, you will support the identification, proper diagnosis, and treatment for TK2d patients.

Who You'll Work With
You will be working in a team that is dedicated to creating a unique patient experience. This includes partnering with healthcare stakeholders such as neuropediatricians, neuromuscular specialists, geneticists, nurses, and pharmacists, as well as interacting with patient groups to raise awareness and educate on this disease.

What You'll Do

• Partner with healthcare stakeholders to ensure TK2d patients are diagnosed and receive appropriate treatment.
• Execute disease awareness and educational programs.
• Establish referral programs to facilitate patient access to centers of excellence.
• Advocate for TK2d inclusion in mitochondrial and neuromuscular panels.
• Map patient journeys to understand pain points and how to mitigate them.
• Interact with patient associations for awareness and educational initiatives.
• Act as the local point of contact for implementing approved managed access programs.
• Help healthcare providers navigate the ecosystem to secure funding for patients.
• Ensure smooth transition from clinical trials and managed access programs to continuous treatment.
• Educate healthcare providers and payors on the safe use of the available treatment.
• Support patients through centrally developed patient support programs.

Interested? For this role we're looking for the following education, experience, and skills

• Bachelor's degree in life sciences, business, or healthcare; Master's preferred.
• University degree in medicine, pharmacy, or natural sciences.
• 7+ years in biotechnology/pharmaceuticals with external engagement experience.
• 5+ years in reimbursement, account management, or KOL development.
• Experience in rare diseases, neurology, clinical genetics, or metabolic diseases.
• Strong project management, planning skills, and emotional intelligence.
• Outcome-driven with a focus on collaboration and communication.
• Field-based position with up to 70% travel.
• Excellent presentation and interpersonal skills.
• Proficiency in Spanish and English.

Are you ready to 'go beyond' to create value and make your mark for patients? If this sounds like you, then we would love to hear from you

About Us
UCB is a global biopharmaceutical company, focusing on neurology and immunology. We are over 9.000 people in all four corners of the globe, inspired by patients and driven by science.

Why work with us?
At UCB, we don't just complete tasks, we create value. We aren't afraid to push forward, collaborate, and innovate to make our mark for patients. We have a caring, supportive culture where everyone feels included, respected, and has equal opportunities to do their best work. We 'go beyond' to create value for our patients, and always with a human focus, whether that's on our patients, our employees, or our planet. Working for us, you will discover a place where you can grow, and have the freedom to carve your own career path to achieve your full potential.

At UCB, we've embraced a hybrid-first approach to work, bringing teams together in local hubs to foster collaborative curiosity. Unless expressly stated in the description or precluded by the nature of the position, roles are hybrid with 40% of your time spent in the office.

UCB is an equal opportunity employer. All employment decisions will be made without regard to any characteristic protected by applicable laws.

Should you require any adjustments to our process to assist you in demonstrating your strengths and capabilities contact us on EMEA- Please note should your enquiry not relate to adjustments; we will not be able to support you through this channel.