RADeep Study Coordinator

The University Hospital Vall d'Hebron is highly specialized in rare diseases on a Regional, national and international level with its incorporation as full member of 20 of the 24 European Reference Networks (ERN).

The scientific direction of the ERN-EuroBloodNet, , the ERN dedicated to
Rare Hematological Diseases
(RHD), is led by Dr Mañú Pereira, head of the Rare Anemia Disorders research lab within the "CANCER Y ENFERMEDADES HEMATOLOGICAS INFANTILES" group at the
Vall d'Hebron Research Institute.
Within the ERN-EuroBloodNet and in line with the strategy the team is leading several projects for rare haematological diseases at European level.

The Rare Anaemia Disorders European Epidemiological Platform (RADeep) is an initiative endorsed by the European Reference Network on Rare Haematological Diseases (ERN-EuroBloodNet) under the frame of the European Blood Disorders Platform (ENROL), the ERN-EuroBloodNet umbrella platform officially endorsed by the European Hematology Association (EHA) for European patients' registries on rare haematological diseases.

RADeep supports the prospective and longitudinal standardized collection of data of patients affected by any RADs at the European level, maximizing public benefit from data on RADs aiming at avoiding fragmentation of data by promoting the standards for patient registries' interoperability. The main objective is to enable epidemiological and disease burden surveillance of RADs in the European Union. Within the frame of RADeep we aim to lead data driven research for RADs in Europe by using Real World Data (RWD)

In this context, we are looking for a dedicated and detail-oriented Study Coordinator to join our team. In this role, you will play a key role in the organizational and operational management of the RADeep registry. This position is focused on ensuring smooth communication, documentation management, and stakeholder coordination. The Study Coordinator will act as a bridge between the RADeep coordinating team, data providers, and external collaborators.

Education and qualifications:
Required:

• University degree in area of biosciences (e.g. Pharmacy, Biomedicine).
• English (B2 European level).
• Good management of MS Office Suite (Word, PowerPoint, Excel) and online collaboration tools (Teams, Zoom, SharePoint, OneDrive).

Desired:

• MSc.
• Other languages are a plus.

*Experience and knowledge:
Required:*

• Ability to work independently as well as collaboratively in a multidisciplinary and international team.
• Ability to attend and actively participate in meetings conducted in English with fluency.

Desired:

• Previous experience in clinical research, patient registries, or project coordination is an asset.
• Strong organizational and multitasking skills.
• Strong interpersonal skills to interact with clinicians, data managers, patient representatives, and industry partners.

Main responsibilities and duties:

• Data provider engagement & coordination

• Serve as primary contact for data providers regarding operational and organizational matters.

• Share updated documentation, manuals, SOPs, and guidance as needed.

• Support onboarding and follow-up of new data providers.

• Meeting management

• Prepare agendas for internal and external meetings.

• Draft and circulate meeting minutes with clear action points and follow-up.

• Coordinate online meetings (Teams, Doodle) and in-person events.

• Communication & documentation

• Draft and respond to emails, ensuring timely and accurate information flow.

• Prepare presentations and supporting material for meetings with data providers, the Steering Committee, and external stakeholders (including industry partners).

• Maintain organized project documentation and shared platforms (e.g. OneDrive, SharePoint).

• Project support

• Assist in the preparation of deliverables and reports.

• Track project deadlines and ensure action items are completed on time.
• Support dissemination activities (workshops, conferences, newsletters).

Labour conditions:

• Full-time position.
• Starting date: immediate.
• Gross annual salary: Remuneration will depend on experience and skills. Salary ranges are consistent with our Collective Agreement pay scale.
• Contract: Technical and scientific activities contract linked to the project activities

What can we offer?

• Incorporation to Vall d'Hebron Research Institute (VHIR), a public sector institution that promotes and develops the biomedical research, innovation and teaching at Vall d'Hebron University Hospital (HUVH), the biggest hospital of Barcelona and the largest of Catalan Institute of Health (ICS).
• A scientific environment of excellence, highly dynamic, where high-end biomedical projects are continuously developed.
• Continuous learning and a wide range of responsibilities within a stimulating work environment.
• Individual training opportunities.
• Flexible working hours.
• 23 days of holidays + 9 personal days.
• Flexible Remuneration Program (including dining checks, health insurance, transportation and more)
• Corporate Benefits: platform through which you can obtain significant discounts on travel, culture, technology, gastronomy, sports... among many others.
• Healthy Offering: choose from a variety of wellbeing focused activities to be the healthiest you.

Deadline to apply:
VHIR embraces Equality and Diversity. As reflected in our values we work toward ensuring inclusion and equal opportunity in recruitment, hiring, training, and management for all staff within the organization, regardless of gender, civil status, family status, sexual orientation, gender identity and expression, religion, age, functional diversity or ethnicity.