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DESCRIPCIÓN DE LA OCUPACIÓN The Germans Trias i Pujol Research Institute (IGTP) is seeking to incorporate a Clinical Data Manager to work on the DM1 Hub project database, the largest clinical registry of patients with Myotonic Dystrophy Type 1 (DM1) in Spain. DM1-Hub is a national clinical registry and research platform that supports clinical research, translational studies, and real world evidence generation in DM1. Due to the growing volume and complexity of the data, the project currently requires a professional with a transversal vision and strong analytical capacity to process and analyse clinical data in order to support strategic decision making, while responding to the evolving needs of the research group. The selected candidate will lead the development of a digital application to enable the prospective follow-up of patients, contributing to the construction of a natural history registry of the disease through the systematic collection of a wide range of Patient Reported Outcome Measures (PROMs).FUNCIONES Lead the processing, analysis, and interpretation of data from the DM1-Hub project database. Developing of graphical user interfaces (GUIs). Building and maintaining pipelines, coding in Nextflow, R, Python, and Bash. Apply a transversal and integrative analytical approach to support strategic decision making related to the evolution and sustainability of the registry. Respond to data-related needs of the research group, translating clinical and scientific questions into analytical solutions. Ensure data quality, harmonisation, standardisation, and interoperability of clinical datasets. Design and lead the development of a digital application for prospective patient follow-up, enabling systematic data capture over time. Implement and analyse a wide range of Patient Reported Outcome Measures (PROMs) to support the study of the natural history of DM1. Generate reports, visualisations, and scientific outputs for internal decision making, publications, and project deliverables. Ensure compliance with ethical, regulatory, and data protection requirements related to clinical research data. SE REQUIERE Master's degree in (Bio)informatics, Data Science, Biomedical Sciences, Computational Biology, or related disciplines. PhD will be a plus. Strong background in (bio)informatics and largescale clinical data analysis. Demonstrated experience in processing, integrating, and analysing complex clinical or biomedical datasets. Experience in designing and developing web and/or mobile applications (TRL 1-5), preferably in a clinical or healthcare research environment. Proficiency in data analysis and programming tools (e.g. R, Python, SQL or similar). Excellent written and spoken English and Spanish; knowledge of Catalan will be valued. Strategic mindset, strong problem-solving skills, autonomy, and ability to collaborate in multidisciplinary teams. SE OFRECE Science law Indefinite contract (17/2022). Full time. Starting date: as soon as possible. Annual gross salary: 27,000-33,000 € depending on qualifications (12 payments). Flexible
