Rare Disease, Global/eu Advocacy Relations

If you feel like you’re part of something bigger, it’s because you are. At Amgen our shared mission—to serve patients—drives all that we do. It is key to our becoming one of the world’s leading biotechnology companies. We are global collaborators who achieve together—researching, manufacturing, and delivering ever-better products that read over 10 million patients worldwide. It’s time for a career you can be proud of. Join us.

Currently, we are looking for an Global/EU Advocacy Relations Associate Director for Rare Disease. This will be a remote role based in Europe and it will report to the Global Advocacy Network Director.

**Rare Disease, Global/EU Advocacy Relations Associate Director**

**LIVE**

**What you will do**

Let’s do this Let’s change the world In this vital role, the Global/EU Advocacy Relations Associate Director for Rare Disease at Amgen is responsible for building and nurturing relationships with global rare disease patient advocacy organizations and contributing to elevating Amgen as a trusted partner of choice for patients and patient organizations across the rare disease community. They work closely with pan-European and local patient advocacy groups as well as with Amgen affiliates in key markets to foster the community among individuals and groups, support educational campaigns, elevate individual patient stories, and champion equitable access to improve health outcomes.

The following are key responsibilities and elements of the role:

- Work with cross-functional global teams to understand global strategy and link to regional and local advocacy strategy.
- Lead community building across multiple launches in rare disease communities with limited or no dedicated advocacy organizations.
- Leverage relationships with regional umbrella organizations to facilitate introductions for local affiliates that can help build relationships with ex-US organizations and expand community advocates.
- Build and maintain long term, substantive relationships with, regional, and country patient organizations and other key stakeholders based on values of trust, respect, and transparency.
- Lead and manage Regional Patient Advocacy Advisory Panels and Boards.
- Represent Amgen at regional rare disease advocacy forums and conferences.
- Support local affiliates in key markets in developing and executing rare disease advocacy strategies based on business priorities.
- Organize forums to share best practices and high-quality initiatives around shared goals including improving patient empowerment, shared decision making, shaping public policy, and equitable patient access to the appropriate treatments for patients with rare diseases.
- Bring the voice of patients and advocates with rare diseases to address patient unmet needs and drive patient focused solutions in the design and development of clinical development programs.
- Collaborate with local teams to facilitate the participation of local rare disease organizations in the design and implementation of multi-country initiatives with regional rare disease organizations.
- Support annual ELMAC Mission Week program, #RAREis program in Europe, and local affiliates’ advocacy activities to recognize and elevate the experiences of patients, caregivers and advocates (e.g. Rare Disease Day).
- Assist local affiliates in identifying patient stories that can be shared on internal and external channels, in compliance with local regulations.
- Work cross-functionally as a strong collaborator with global and regional teams including Communications, International Government Affairs, Value and Access, Marketing and Medical.
- Manage sponsorship and donation contracting process working closely with regional and local legal and compliance teams and seek ways to continuously improve processes.
- Coordinate Amgen’s engagement strategies with stakeholders at key medical congresses.
- Identify and understands the drivers behind the official positions, priorities, and networks of influence of key patient and professional associations and advocacy groups to advise Amgen’s business strategies.

**WIN**

**What we expect of you**

We are all different, yet we all use our unique contributions to serve patients. The Advocacy professional we seek will have these qualifications:
**Basic Qualifications**:

- Doctorate degree and 2 years of advocacy, policy, marketing, or medical experience OR
- Master’s degree and 4 years of advocacy, policy, marketing, or medical experience OR
- Bachelor’s degree and 6 years of advocacy, policy, marketing, or medical experience OR
- Associate’s degree and 10 years of advocacy, policy, marketing, or medical experience OR
- High school diploma / GED and 12 years of advocacy, policy, marketing, or medical experience.
- Fluent English is required and fluency in one or more European languages.

**Preferred Qualifications**:

- 5+ years of experience with patient advocacy groups and/or professional (medical) associations.
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