Scientific Coordinator

VHIR-RRHH-FOR-003_vs01_

TheVall d'Hebron Research Institute

(VHIR) is a public sector institution that

promotes and develops the research,

innovation and biosanitary teaching of the

Vall d’Hebron University Hospital. Through

the excellence of our research, we identify

problems of society and we contribute to

spread them around the world.

In April 2015, the **Vall d’Hebron**

**Research Institute (VHIR) **obtained

the recognition of the European

Commission **HR Excellence.**

This recognition proves that VHIR

endorses the general principles of the

European Charter for Researchers and

a Code of Conduct for the Recruitment

of Researchers **(Charter & Code)**.

**VHIR embraces Equality and**

**Diversity. As reflected in our values**

**we work toward ensuring inclusion**

**and equal opportunity in**

**recruitment, hiring, training, and**

**management for all staff within the**

**organization, regardless of gender,**

**civil status, family status, sexual**

**orientation, religion, age, disability**

**or race.**

**Scientific Coordinator - European Rare blood**

**disorders Registries**

**Rare Anemias Disorders Research Laboratory**

The University Hospital Vall d'Hebron is highly specialized in rare diseases on a Regional, national and international level

with its recent incorporation as full member of 20 of the 24 European Reference Networks (ERN).

of 96 healthcare-providers from 14 Member States, with important interactions with patient groups covering those

conditions. ERN-EuroBloodNet coordination is based at three main hubs: St. Louis Hospital (Paris) especially for the

oncological medical direction, ERASME Hospital (Brussels) especially for the non-oncological medical direction, and Vall

d’Hebron University Hospital
- Vall d'Hebron - Institut de Recerca (Barcelona) for the scientific direction. The ERN
- EuroBloodNet coordination hub based in Barcelona is led by Dr Mañú Pereira, head of the Rare Anemia Disorders

research lab within the “CANCER Y ENFERMEDADES HEMATOLOGICAS INFANTILES” group. Our research strategy is

focused on the development and validation of innovative methodological approaches for better characterization of patients

affected by rare anemia disorders according to their individual features to allow personal risk profiles and personalized

medicine.

The ERN-EuroBloodNet coordination hub based in Barcelona is devoted to improving the healthcare provided to patients

affected by RHD in different transversal areas, being one one of them the promotion of the epidemiological surveillance.

In this specific area, **projects on European patients’ registries for these diseases** are directly led by the team.

In this context, we are looking for a motivated, self-driven and committed Scientific Coordinator who will **drive forward**

**the development of the different patients’ registries **coordinated in the Rare Anemias Disorders Research Line.
- VHIR-RRHH-FOR-003_vs01_

TheVall d'Hebron Research Institute

(VHIR) is a public sector institution that

promotes and develops the research,

innovation and biosanitary teaching of the

Vall d’Hebron University Hospital. Through

the excellence of our research, we identify

problems of society and we contribute to

spread them around the world.

In April 2015, the **Vall d’Hebron**

**Research Institute (VHIR) **obtained

the recognition of the European

Commission **HR Excellence.**

This recognition proves that VHIR

endorses the general principles of the

European Charter for Researchers and

a Code of Conduct for the Recruitment

of Researchers **(Charter & Code)**.

**VHIR embraces Equality and**

**Diversity. As reflected in our values**

**we work toward ensuring inclusion**

**and equal opportunity in**

**recruitment, hiring, training, and**

**management for all staff within the**

**organization, regardless of gender,**

**civil status, family status, sexual**

**orientation, religion, age, disability**

**or race.**

**JOB DESCRIPTION**

**Education and qualifications**:
**Required: -**

University degree in Biology, Biosciences, Medicine
- Master / PhD in Epidemiology (or 5 years of proven expertise in epidemiology)
- Fluent (spoken and written) English

**Experience and knowledge**:
**Required: -**

Ability to understand epidemiological data, to analyse datasets and to write scientific reports
- Experience with the management and exploitation of patients registries
- An analytical mindset with problem-solving skills
- An easy-going person with human qualities, able to lead an International Consortium
- Ability to work effectively with a dynamic team and to work independently with tight deadlines

**Desired**:
- Experience on GDPR, legal agreements (MTA, Data sharing agreements) and ethics documents (preparation

of submission file for ethics)

**Main responsibilities and duties: -**

Coordination of the implementation of the European Patients Registries coordinated by VHIR, or in which VH