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Kam Rare Diseases
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Healthcare Research
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Rare Disease Manager Spain
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Rare Disease Manager Spain
hace 2 semanas
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(Wk-226) Rare Disease Manager Spain
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Senior Portfolio Manager
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Senior Portfolio Manager
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(Wk-226) Rare Disease Manager Spain
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Healthcare Research
hace 2 semanas
Barcelona, España Clarivate Analytics A tiempo completoHealthcare Research & Data Analyst (Infectious, Niche, Rare Disease)We are looking for a Healthcare Researcher & Data Analyst to join our Life Science & Healthcare (Infectious, Niche, Rare Disease) therapy group in Barcelona.The role comprises three broad functions: 1) market research and insights generation; 2) project management and execution; and 3)...
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Healthcare Research
hace 4 semanas
Barcelona, España Clarivate Analytics A tiempo completoHealthcare Research & Data Analyst (Infectious, Niche, Rare Disease) We are looking for a Healthcare Researcher & Data Analyst to join our Life Science & Healthcare (Infectious, Niche, Rare Disease) therapy group in Barcelona.The role comprises three broad functions: 1) market research and insights generation; 2) project management and execution; and 3)...
Rare Disease, Global
hace 3 meses
If you feel like you're part of something bigger, it's because you are. At Amgen our shared mission—to serve patients—drives all that we do. It is key to our becoming one of the world's leading biotechnology companies. We are global collaborators who achieve together—researching, manufacturing, and delivering ever-better products that read over 10 million patients worldwide. It's time for a career you can be proud of. Join us.Currently, we are looking for an Global/EU Advocacy Relations Associate Director for Rare Disease. This will be a remote role based in Spain and it will report to the Global Advocacy Network Director.Rare Disease, Global/EU Advocacy Relations Associate DirectorLIVEWhat you will doLet's do this Let's change the world In this vital role, the Global/EU Advocacy Relations Associate Director for Rare Disease at Amgen is responsible for building and nurturing relationships with global rare disease patient advocacy organizations and contributing to elevating Amgen as a trusted partner of choice for patients and patient organizations across the rare disease community. They work closely with pan-European and local patient advocacy groups as well as with Amgen affiliates in key markets to foster the community among individuals and groups, support educational campaigns, elevate individual patient stories, and champion equitable access to improve health outcomes.The following are key responsibilities and elements of the role:Work with cross-functional global teams to understand global strategy and link to regional and local advocacy strategy.Lead community building across multiple launches in rare disease communities with limited or no dedicated advocacy organizations.Leverage relationships with regional umbrella organizations to facilitate introductions for local affiliates that can help build relationships with ex-US organizations and expand community advocates.Build and maintain long term, substantive relationships with, regional, and country patient organizations and other key stakeholders based on values of trust, respect, and transparency.Lead and manage Regional Patient Advocacy Advisory Panels and Boards.Represent Amgen at regional rare disease advocacy forums and conferences.Support local affiliates in key markets in developing and executing rare disease advocacy strategies based on business priorities.Organize forums to share best practices and high-quality initiatives around shared goals including improving patient empowerment, shared decision making, shaping public policy, and equitable patient access to the appropriate treatments for patients with rare diseases.Bring the voice of patients and advocates with rare diseases to address patient unmet needs and drive patient focused solutions in the design and development of clinical development programs.Collaborate with local teams to facilitate the participation of local rare disease organizations in the design and implementation of multi-country initiatives with regional rare disease organizations.Support annual ELMAC Mission Week program, #RAREis program in Europe, and local affiliates' advocacy activities to recognize and elevate the experiences of patients, caregivers and advocates (e.g. Rare Disease Day).Assist local affiliates in identifying patient stories that can be shared on internal and external channels, in compliance with local regulations.Work cross-functionally as a strong collaborator with global and regional teams including Communications, International Government Affairs, Value and Access, Marketing and Medical.Manage sponsorship and donation contracting process working closely with regional and local legal and compliance teams and seek ways to continuously improve processes.Coordinate Amgen's engagement strategies with stakeholders at key medical congresses.Identify and understands the drivers behind the official positions, priorities, and networks of influence of key patient and professional associations and advocacy groups to advise Amgen's business strategies.WINWhat we expect of youWe are all different, yet we all use our unique contributions to serve patients. The Advocacy professional we seek will have these qualifications:Basic Qualifications:Doctorate degree and 2 years of advocacy, policy, marketing, or medical experience ORMaster's degree and 4 years of advocacy, policy, marketing, or medical experience ORBachelor's degree and 6 years of advocacy, policy, marketing, or medical experience ORAssociate's degree and 10 years of advocacy, policy, marketing, or medical experience ORHigh school diploma / GED and 12 years of advocacy, policy, marketing, or medical experience.Fluent English is required and fluency in one or more European languages.Preferred Qualifications:5+ years of experience with patient advocacy groups and/or professional (medical) associations.3+ years of experience working for global pharmaceutical companies as a liaison with patient advocacy groups and/or professional associations.Sensitivity to diverse groups of people both internal and external with the ability to manage many different opinions and perspectives, including tolerance for ambiguity.Demonstrated reputation internally and externally as a well-respected, dynamic team-player.Empathic and hardworking individual with the ability to build meaningful connections with stakeholders.Previous experience leading the development of professional medical society and patient advocacy strategies for pharmaceutical organizations.Previous experience as relationship manager for professional medical associations and patient advocacy groups.Demonstrated understanding of key external and internal trends affecting patient and consumer engagement; solid understanding and experience in new forms of patient/consumer interactions such as social media and patient online communities.Previous experience communicating the value of innovation and addressing access barriers to care.Previous experience communicating complex health policy access issues to patient advocates.Demonstrated ability to adapt relationship style to external partner's preferences and comfort levels.Previous experience in government affairs.Outstanding verbal and written communications skills and an ability to adapt one's approach to a challenge, as well as excellent interpersonal skills.Ability to assimilate complex medical knowledge and communicate to non-medical audiences.Capable of handling shifting priorities in a constantly evolving environment.Understands the pharma/biotech business model, regulatory process & compliance guidelines.Experience with product (drug) launches.THRIVEWhat you can expect of usAs we work to develop treatments that take care of others, so we work to care for our teammates' professional and personal growth and well-being.Vast opportunities to learn and move up and across our global organizationDiverse and inclusive community of belonging, where colleagues are empowered to bring ideas to the table and actGenerous Total Rewards Plan comprising health, finance and wealth, work/life balance, and career benefitsEQUAL OPPORTUNITY STATEMENTAmgen is an Equal Opportunity employer and will consider you without regard to your race, colour, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, or disability status.We will ensure that individuals with disabilities are provided a reasonable accommodation to participate in the job application or interview process, to perform essential job functions, and to receive other benefits and privileges of employment. Please contact us to request an accommodation.#J-18808-Ljbffr
