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Director, Global Patient Advocacy Lead, Rare Disease
hace 3 meses
.This is what you will do:Reporting to VP Global Head Patient Experience, this position is part of Alexion AstraZeneca Rare Disease Patient Experience team and is responsible for leading the Global patient advocacy strategy and patient engagement for the emerging therapeutic portfolio across drug discovery and commercialization. This role will drive the global strategy to find opportunities to understand and support the patient journey including accelerating the time to diagnosis, disease awareness and resources, treatment advances, and providing caregiver support to improve health outcomes. The Director, Patient Advocacy will be responsible for driving, building, and enhancing strategic alliances with both disease-specific advocacy organizations and those that span across disease area umbrella groups, as well as other rare/ultra-rare disease-oriented organizations in response to patient needs to drive Alexion AstraZeneca Rare Disease global patient advocacy strategic goals Additionally, you will work with cross functional partners and local country contacts to accelerate organizational objectives. In this role you will enhance Alexion's commitment and demonstration of patient centricity. Through understanding of the patient community, this individual will bring the patient perspective into Alexion Astra Zeneca Rare Disease decision making.You will be responsible for:* Advancing patient-focused drug development, including trial design, recruitment, regulatory preparations, and internal and external communication.* Shaping and coordinating execution of global patient advocacy strategy and plans for pipeline indications working closely with Therapeutic Area leaders of Alexion's Medical and Commercial organizations to support local strategies and objectives, and coordinating with critical internal partners, including Medical Affairs, Clinical Operations, Government Affairs and Market Access, Marketing, Corporate Communications, Regulatory, Legal and Compliance.* Support advancing Alexion Health Equity ambition.* Driving, building, and enhancing external engagement and strategic alliances with relevant Global and pan European and regional patient advocacy organizations both disease-specific and those that span across disease area umbrella groups, as well as other rare/ultra-rare disease-oriented organizations and conditions.* Linking appropriate patient groups with the information and resources needed to support patients and caregivers to advocate for appropriate care
